Our Foundation has been established to eliminate the life-threatening PLN- heartdisease p.Arg14del. This genetic disorder causes heartdiseases (such as cardiomyopathies, arrhythmias) whereby the pumpfunction of the heartmuscle is significantly defective. PLN-gene carriers are burdened with serious heartfailure problems which may lead to ventricular assist devices, hearttransplants, or even sudden premature death. Read more about our Foundation here.
Where to find us?
PLN Genetic Heart Disease Foundation
P.O. Box 66
NL – 1775 ZH Middenmeer, the Netherlands
Pieter Glijnis | Chairman
Evert de Boer | Secretary
Gerlof de Vries | Treasurer
Eric Kok | General Board member
Jan van der Zouw | General Board member
Our Foundation Board members are neither receiving remuneration, nor indemnities for their services.