Our Foundation has been established to eliminate the life-threatening PLN heart disease p.Arg14del. This genetic disorder causes heart diseases (cardiomyopathies, arrhythmias…) whereby the pump function of the heart muscle is significantly defective. PLN gene carriers are burdened with serious heart failure problems which may lead to a heart transplant, ventricular assist devices or even sudden premature death.
Where to find us?
PLN Genetic Heart Disease Foundation
P.O. Box 66
NL – 1775 ZH Middenmeer, the Netherlands
Pieter Glijnis | Chairman
Evert de Boer | Secretary
Gerlof de Vries | Treasurer
Eric Kok | General Board member
Jan van der Zouw | General Board member
Our Foundation Board members are neither receiving remuneration, nor indemnities for their services.