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PLN Foundation. Foundation of patients for patients.

PLN Foundation

plnheart.org PLN Foundation

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PLN Foundation

Our Foundation has been established to eliminate the life-threatening PLN- heartdisease p.Arg14del. This genetic disorder causes heartdiseases (such as cardiomyopathies, arrhythmias) whereby the pumpfunction of the heartmuscle is significantly defective. PLN-gene carriers are burdened with serious heartfailure problems which may lead to ventricular assist devices, hearttransplants, or even sudden premature death. Read more about our Foundation here.

Where to find us?

PLN Genetic Heart Disease Foundation

P.O. Box 66

NL – 1775 ZH Middenmeer, the Netherlands

Administration

Pieter Glijnis   |   Chairman

Evert de Boer   |   Secretary

Gerlof de Vries   |   Treasurer

Eric Kok  |  General Board member

Jan van der Zouw  |  General Board member

Remuneration Policy

Our Foundation Board members are neither receiving remuneration, nor indemnities for their services.

Beleidsplan Stichting PLN 2020

Rapportage-2018-Stichting-Genetische-Hartspierziekte-PLN2

You are here: plnheart.org PLN Foundation

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Join the fight against
PLN Genetic Heart Disease

By sponsoring our PLN transatlantic research project, you will be investing in a unique opportunity to accelerate the development of a curative treatment for heart disease.

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PLN Foundation. Foundation of patients for patients.

PLN Foundation

Our Foundation has been established by volunteers or people suffering from PLN, family members and their loved ones, and tries to inform PLN gene carriers as much as possible about the latest developments and PLN studies.

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